How can you help and take part?
There is a campaign running on social media at the moment (19.12.17) around patient and staff experiences of research within the NHS - please follow the links to access this information on Twitter or Facebook.
Previous research participants from Kent, Surrey and Sussex have stated that helping other people was a significant reason which drove them to take part. It’s clear that patients know that the treatments we have today are as a result of people taking part in research in the past.
As a member of the Research Network, we will from time to time invite patients to take part in research studies. You will always receive clear information about what taking part in any research study would involve. You will have the opportunity to ask questions and obtain further details about the study with no obligation to take part. Participation in any research project is entirely voluntary and you can withdraw at any time throughout any study. Declining or withdrawing from any study will not affect your medical care in any way.
There are various ways a patient can become involved in studies at Park Surgery and requirements vary from study to study.
- You may be asked by a member of the Practice to consider taking part in a particular research project; Your participation could involve:
- Filling in a questionnaire
- Talking to a researcher about your views/symptoms
- Letting the researcher look at your medical notes
- Trying a new treatment, therapy or device
- Experiencing new combinations or timings of treatments
- Providing samples for testing (blood, urine, breath etc.)
- You may be sent information through the post if we feel you may be a suitable participant.
- You may read information about a current study in the patient waiting room or on the surgery website and wish to take part.
If you do agree to take part in a study, you will be asked to sign a consent form. This will clearly state which part of your notes (if any) may be looked at for the purposes of the research study. Nobody from outside this practice will be given your contact details or have access to your medical records without your prior consent. Everyone who has access to your records, or any of your details for research, is bound by a strict code of conduct to keep your data confidential. Where possible, all data collected from you for research purposes will be coded with a number rather than your name.
You will not be asked to take part in a large number of studies; Most researchers are very specific about the criteria that that people need to meet in order to enter their study. Usually this means that only a small number of our patients will be suitable for any one study.
Please also access the UK Clinical Trial Gateway for further details on NIHR portfolio studies
(Please Click Here) or call the Clinical Research Network on 01273 641417.
What is it like to participate in research?
Patient experience survey carried out by the Clinical Research Network from Kent, Surrey and Sussex in 2015 showed that:
- 96% thought research should be considered a normal part of NHS care.
- The vast majority of participants had a very satisfying experience, from their intial introduction to the research to completing the study.
- 98% found staff friendly and helpful.
- Participants felt well valued and supported with easy access to staff.
- Participants felt well informed about the study with time given to consider and make informed choices.
- Most people would be happy to take part in a study in the future and/or recommend to others.
Before a research project starts, it is looked at by various organisations to make sure it is OK for you to take part. These include an NHS Research Committee and the NHS organisation responsible for your care. They make sure any risks have been looked at, that the study is of value to patients and the NHS, and that it respects the rights, safety and wellbeing of those taking part.
They also review projects regularly after they have started to make sure they continue to be safe.